Type 1 diabetes

I just posted a short question, but I thought I would introduce
myself. My husband is a brittle Type 1 diabetic. We found this out
about a month before his 30th birthday. He works hard at keeping
track of his levels and making sure he keeps them as level as
possible, but it’s very difficult for him. He’s been looking for a
bulletin board or chat for type 1’s for a while now, but hasn’t found
one yet. I thought I’d check out this group for him, if ya’ll don’t
mind. Anyway, I may jump in with some questions and/or comments
from time to time, so bear with me, please.
I have noticed that one or two of you have switched to the pumps. How
are they performing for you? How difficult/easy was/is it to control
your levels before/after the pump? How difficult/easy is it to care
for/wear?
Thanks!
Marjorie

my dad takes insulin injections daily. but the problem is that the
sugar level does not remain at a consistent level. sometimes it’s too
high and sometimes it’s too low…he didn’t have this problem when he
was taking tablets…is it like this for everyone?
aswini

Jerry,
Boy your getting an update on my daughter Theresa sooner then I would be writing about anything out of the ordinary happening. Yesterday morning, Theresa woke up with higher blood sugar of about 300, so she got 8NPH, and 5 Humalog which brought her down to what she should be. She had breakfast at 8:30 after her shot, a snack at school at 10pm, and low and behold at noon for lunch, she was trying to be responsible since she knew her sugar was high that morning, and the little devil decided not to eat but a rabbits nibble of her lunch (she said a juice, and a little bit of spagetti, as we let her buy her lunch at school which I very RARELY do)… so when she got to the daycare provider (who also happens to be diabetic, and has been since she was my daughters age) at 3 pm. She was 42!!!! forty two! So the daycare provider gave her a snack, and when we got her home at 6 she was about 175. I fed them a light dinner, and headed off to the store, leaving her here with my
husband, he gave her a shot of 8nph, and 5 humalog again same as he had in the morning without thinking…. oh my god… i got home ready to give my girls (i have 3, 2 besides theresa their bedtime snacks, and theresa was already out….. which made me very suspicious. So I was like hunny, how much insulin did you give her, and when he told me I went bolistic. I went in my daughters room, and tried to wake her … IMPOSSIBLE, I lifted her up and she kept going right back down.. so I picked her up and put her in my lap facing me, and started talking to her, and tested her blood sugar… she was 61, this was about 9:30 pm…. I knew she would drop way too low if I didnt act fast as she doesnt get up for school till about 7am. So I actually almost used a Gluagon ER Kit for the first time, but when she saw that she freaked out.. she went into that hysteria phase that cannot be stopped, and thats when I knew she wasnt gonna eat or drink, I had to take control. It was so hard
since I hadnt ever done this, but saw nurses have to do it to her in the hospital when she was first diagnosed, but I had to hold her down, and ram a tube of glucose gel down her throat. I thought she was going to gag on it, but I got her to swallow it all. It took her 30 minutes laying on the floor in my room, to calm down and go back to sleep. And when I was trying to calm her, she used her heartwrenching line on me.. “mommy i dont wanna be diabetic anymore… I just want to be dead” I broke right out in tears… I cried so long and hard, that i have a sore throat today from it. I feel so bad for her, at times I wish there was some way that she could possibly know how much I love her, and how lucky I feel to still have her in my life, she is my miracle, my angel, and god blessed me with her. Well when she got up this morning at 7, after this whole episode last night, can you believe that she was 47! forty seven… still low, I guess had I not gave her the gel she would
have been in a coma, so I had her eat a bowl of cereal to get her # up…. I kept her out of school today so I could more closely monitor her. I gave her a light lunch and a light dinner, and she has been running 2-300’s all day. It was cold today, perhaps she caught something. But Jerry this is the biggest up and down roller coaster of #’s I have seen with her in soooooo long. The last entire month up until 3 days ago, she was stable, and on the same average… now it’s like the diabetes has come to attack her again. I tell her if she can keep it undr control, it will help it go away. But she is starting to hate me for it, cause no matter how hard she tries sometimes, it just doesnt help her. I’m glad after her last dr appt, where her hba1c was up slighty I decided to get her back in 7 weeks rather then 12. So she will go back the end of October. I called her Nurse frantic in the middle of the night last night after this happened, so she stopped by to see us today in
the afternoon, which was great support. I will probably call and try to get her in to be soon sooner.. if not by the endo, at least by an on call. Any support from those of you who have dealt with this disease much longer then I would be greatly appreciated. As I said my daycare provider is diabetic, and I listen and pick up as much as I can from her, but it is always good to get as many aspects of this as you can from whoever is willing to share. Every day I wish I could take the diabetes away from her and give it to myself, I know I cant, but I still wish it. I even wonder if I gave her diabetes somehow by eating ice creme or drinking a soda while I was pregnant. I know it sounds totally silly, but noone in my family has this, and now my baby is dealing with it. I hope to get her in a camp they are having near me around christmas time for 3 days, the only one near us till next spring. I hope she can meet other kids with this, and understand how un-alone she is in this. She
is a fighter, but her spirits starting to shatter, and I cant let that happen.
I hope everyone in the group is well, as well as your familes. Take care and thanks for allowing me the opportunity to have a place to share, with people who understand and care. I appreciate it more then any of you could know Angela (mom of theresa)

Hi there!
My name is Andrea and my husband has had type 1 for 15 years. He has
always been in good control and has had no big problems. Well, until
recently. Within the last 3 months, paramedics have been called twice
for insulin shock, and we’ve had at least 3 other close calls. Up
until now I have been just loosely involved in his maintenence, since
things seemed fine. To my knowledge, there haven’t been any major
changes to his insulin dosage, etc, except that he did start taking
Actose (sp?) in addition to the insulin. (I need to read up on what
Actose does)
So here I am, scared to sleep at night (I had to call 911 in the
middle of the night when I woke up to find him in shock, unresponsive,
etc.) and afraid to leave my kids with him because he seems so
unstable. Why would he become so brittle so suddenly??? I understand
that diabetes is a progressive disease, but this just seemed to come
(more…)

Hi all! I am a Type II Diabetic. Just went on insulin a couple of
months ago after several years of oral medication. I am also a
freelance writer for several publications. I am working on an article
about how to deal with insurance companies as a diabetic. Things like
not getting enough or any reimbursement for testing equipment or
medications, horror stories or good stories of working with insurance
companies, ect. If you could help share some of those things, please
e-mail me directly at jayrohman@…. Thanks!
Jay
Hebrews 3:13
www.encouraging101.org

i just wanted to thank all of you for your support and thank you all
for listening to what i have to say i do feel better after tlking
to all of you and i will make it TAHNKS TO YOU ALL
Bridget

I just started takeing Humlin70/30 as of today and i feel like i am
the only person who is going through this. My husband says dont
worry it will be all right but he doesnt have to be the one twice a
day giving themselves a shot. Am I supposed to feel like this or
will it ever get better???? I feel so lost. All of my family who
has type 1 diabetes is living in Cal. and I am here in OK. I hope
in time I will feel better but I guess only time will tell. If
anyone knows what I am going through pleasr feel free to email me or
something I sure could use someone who knows what I am going throuhg
right now. Thanks for listing to me I feel a little better after
telling my story. Bridget

thanks for all the kind words of welcome this seems like a very
friendly group. And I thought diabetics were supposed to be
moody………;-)

Hi group, My name is Steve and I’m a type one from Norwich, England,UK
I am 44 years old and only discovered that I had the condition 2 years
ago! Although I’m Insulin dependent I still manage to squeeze out a
little of my own now and again. I am what some people call Type1 1/2 I
would love to get in contact with anyone anywhere,who has a similar
experience.