Moms with kids with diabetes?
Hi, I get such little mail from this group. How many moms with children with diabetes? My son was diagnosed just 2 months ago and he’s only 6, I could use some support if anyone is out there! I have so many questions, my head is still kind of spinning from all of this. Do I have to worry about the Nile virus from the mosquitos in the summer? The virus has gotten to be pretty bad, killing a few elderly people and it warns people with auto-immune diseases and young children, which is MY SON! So, I am worried. But then I thought of the diabetes camps they have for kids. I know they can’t be avoiding all mosquito bites.
Also, I worry about my son’s high blood levels taking a toll on him in his later years. When he has a high food reading, can’t that still be bad for him over the years? Right now he’s only on 5 units of cloudy in the mornings (he’s still in the honeymoon period) so times like last night after supper (pasta) he was still way over 200 at 11pm! I should have given him 1 unit of clear but he still brings himself down overnight to really good normal levels, often in the 60’s. He was taking clear insulin in the evenings especially when he didn’t exercise much during the day which he hadn’t. But since he was getting pretty low in the night the Diabetes educator took him off the insulin at night altogether. So last night he was high for several hours.
Any suggestions? Thanks, Benita
August 29th, 2003 at 8:18 pm
Benita,
My daughter is 17 and was just diagnosed a couple of months ago too. We are in the honeymoon period and it freaks me out too. She gets really low sometimes and then high. It’s gonna take some time to adjust to all of this. She’s got the pump papers filled out and we are just holding on until she gets on the pump. I “think” things will be easier then. I’m sorry I’m not any help, but I feel your pain!
Susan in Texas
August 30th, 2003 at 6:51 am
Susan,
Thanks so much! It’s so nice that other moms feel my pain!!!! LOL It’s nice to know others are in the same thing as me! So thank you!! My son is only 6, so sad for me to go thru this!!! I lost my first baby, also a boy (at 2 weeks from arteriovenus malformation which is a cluster of blood vessels that burst in his brain) so I’ve always felt that my other 3 kids should be perfectly healthy but my dd had all kinds of problems with her kidneys the beginning of the year and now my son diagnosed with diabetes!!!!! I feel like this just shouldn’t be happening!!!!!! Grrr!! But I have accepted it….
Benita
August 31st, 2003 at 1:01 am
Thank you soooo much Melissa!!!
My son was also diagnosed just a few weeks after he turned 6. I didn’t realize you were the one who started the group! So thank you!!!!
I live in the Northeast, in NY, near Albany so the Nile virus is bad here in the summer which makes me worry. I already kept them in past dark or at dusk but when we went to a friend’s camp it was right on the river and it was mosquito heaven! I’m just worried about places like that especially now. But they have those diabetes camps, so I guess they don’t worry.
We dont’ use babysitters either but we do swap with friends who I trust which works out great. I just have to teach them what to do about Bryan’s lows and how to deal with those.
I just spoke with one of the diabetes educators and she said the highs don’t have any damage on kids until they hit puberty. Has anyone ever heard that before? She said they have some type of protective barrier. So that’s nice to know!
Anyway, thanks so much for your support!!
Benita, attachment style parenting advocate and home educator to 3 children (12, 9½, and 6, dx with diabetes), going on our 7th year now, living in upstate NY.
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