Type 1 diabetes

Hi Diana
You asked me about medical care in Hungary. I can say that I’m lucky
in this case, because I had and I have very good doctors. My present
doctor is one of the best specialists in Hungary. In spite of this
fact I heard about pumps you can use continously last year. When I was
diagnosed in 1986 (I was 14 years old) I used a pump for about two
weeks in the hospital. In that time there was only one pump in that
hospital and I think there weren’t more than 4-5 pieces in the whole
country. The pump you use works probably similar, but it is more
advanced, I think. The treatment of diabetes is very expensive. I get
full assistance for my Insulin because I need to give me more than 5
times a day by Pen (NovoPen). Many people have to pay for their
Insulin injection (particular percent of the full price). How is it in
the U.S.? The Pens and the injections are popular kinds of treatment
in Hungary at this time.
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Hi I am new to this and to message groups as well. I was diagnosed
with type 1 when I was 5 and am now 26 and live in London, UK. Is
everyone on this board mainly american?
I feel really healthy and would like to reassure parents with
diabetic kids that my mother barely thinks about it now and I can
honestly say it doesn’t affect me much as long as I am good. I was
sent to diabetic camps in the summers arranged by Diabetes UK from
age 5 and found it great for meeting other diabetic kids and learning
stuff and am going to help out on one this year. More recently, I
have found that walking to work and back every day - 8 miles - don’t
know what that is in km, really helps blood sugar levels.
My brother recently got type 1 at age 28 and has been finding out
about the glycemic index which is new to us. Has anyone tried it
found it makes a big difference? Does anyone have any advice?
And are there any diabetic women out there who have kids post
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How likely is it to have a neg test but still have Diabetes?

I don”t think that it is very likely. Did they just do a urine test or did they also do a blood test? I have never heard that diabetes was difficult to diagnose.

I was diagnosed at age 6 with type 1. Showed up right away with the first test.
Sarah eats 11 oz of formula a day. Yep, 11 oz, this is not a typing
.
She will be one year old on April 4th and currently weighs 15lbs
10oz.

Does Sarah eat anything besides the fromula? I know how worried you must be. My daughter was a tiny little thing. She weighed 16 pounds when she was a year old. She has done just fine and is now 23 years old and weighs 100 pounds. Did Sarah start out small?

Hope to have helped you

Diane

How likely is it to have a neg test but still have Diabetes?
My DD, Sarah is Dx as FTT (Failure to thrive)
they did the diabetes test, it came back negative.
She has urine reducing substances.
So they ran additional test: amino acid, metabolic screens, and
carbohydrated study of urine.
The tests finally came back, showing she has fructose overflow in her
urine. I have been mixing powdered formula with fruit juice.
Okay except - They went back to her June 25th test when she was 3
months
old. It too tested positive for reducing substances. NO Way it
could be fructose because she was solely breastfed back then.
So my babbling leads me to the fact we have more question now than
ever.
At was age were you (or child) Dx w/diabetes?
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Acurian All Acurian News

hi, i am a grade 11 student that has been diabetic since i was
eight. I am lookingh for some help on a website that i am creating
to help people with diabetes (mostly children and teens) for a
science fair project i hope to take to the national level. I would
appreciate anyone who would like to share their reactions when they
(or loved one) was first diagnosed (feelings ect..) or questions you
might have had at first. Thank you to anyone that is willing to
help please send all responces to the_squee@…
any other ideas or stories would also be appreciated.
~the_squee

We’re looking into the Disetronic. I guess it’s the only one that gives you 2 pumps at once! So you have a back up!

I used to have a minimed pump and have switched to the disetronic and I love it. The disetronic also has a warning when you only have 20 units left. That has come in real handy for me. It is also somewhat waterproof. I think it is also easier to contact their support line.

Diane

Hi, Just happened across this group and thought I would throw out
there my own experiences. I have been a diabetic for 28 years and am
now 30. Currently, I have no medical problems nor any issues with
renal function or healing. According to my doctors, I seem to be in
a small group that are not having medical issues. I hope this is
truly not the case….
After 28 years of this, I feel I can share some tips that perhaps
could be helpful and maybe there are others whom can share something
with me. I do have some wacky problems that are annoying more than
anything. For example, I no longer feel the low blood sugars like I
used to which I know now is “normal” however, I am curious to know if
there are methods we can use to “retrain” the body/mind connection?
Or how about some hormone secrets since insulin is a hormone?
I am an herbalist, 98% vegetarian and shy away from refined sugars.
I also refrain from indulging in sugar free foods that contain
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My 17 year old daughter has been on the pump for 3 weeks now and I’m feeling a lot more comfortable with her diabetes. She was diagnosed in November last year. She seems to have better control now.

Hi Laura…. I read ur email .. sounds so similar to my story .. Nicolas was diagnosed in March of 2001. He had jsut turned 6 years old. We were devastated .. shocked & naive. There was no history of type 1 diabetes in my family either .. I knew nothing at all. I spent a week in hospital with Nicolas learning all i could possibly learn .. We had to practice giving the injections .. the hospital wouldnt let us go home until we were clear on everything .. But i find everyday we are learning .. there are good days and bad days .. Finding him stuff to eat that he likes is a big problem and then getting him to eat any meal im under an hour is hard. **Sigh** Nicolas was giving his own injections 2 weeks after he was diagnosed.. but soon tired of it and we had to give them again .. then in the last month he started again and measuring his insulin up under supervision .. But once again he stopped this time because 2 times he tried to give himself an injection but the needle must
have been a bit blunt or his skin too tuff.. So he stopped again. Nicolas is on Actrapid and Protaphane in the morning and again at night. He copes pretty well .. tho thre are days when he says mum this diabetes sucks .. and days when we sit and cry together .. then we have good days too .. when he says mum it isnt so bad because what other kid gets jellybeans at midnight LOL We have to laugh or i think i may just cry. So Take care and go one day at a time.

Leanne mum to Nicolas aged 8 DX @ 6 23rd March 2001