Hello Carol,
Owwwwwwwwwwwwwwwww. This one is a major pet peeve.
I’ve left foot prints up one side and down the other of any MD/RN, or CDE who dares use that term. (If they thought I was non-compliant, try using that term and see ~seething hostile~!) It takes a special kind of ignorance to use that term with Type 1 folks…. (perhaps even with other diabetics as well???)
Compliance is fundamentally based on the whole “sugar fairy” view of diabetes. The rosey, cheery, rah-rah nothing will or can ever go wrong idea. The author who wrote “Diabetes Burnout” (Polansky I think) spoke briefly about this
(I loathed the book regardless, but thought several points were decently well made regardless).
.
Until our readings are done literally every 5 minutes for a couple of days, weeks (in order to REALLY tell what true patterns and sub patterns exist…) its all best guess-timation, and only best guess work we are able to make based on tangible detectable patterns and known habits. I was in a protocol many months ago which every 5 minutes for 3 days a reading was taken by the device. Contrary to some popular notions, I think we’re ALL aware this is a complex dis-ease. There are factors which are typically taken into consideration to explain ones numbers. Yet we (sic. I) often cannot easily figure out why our numbers are doing whatever they are attempting to do; high, low… what have you.
Lots of people get severely attached to these numbers, and eventually QUIT caring, stop doing them all together out of despair, frustration, fatigue. Some cannot FIND the patterns in their numbers no matter how tightly they “take hold” of every behavior possible. Some by virtue of that kind of hyper vigilance go nuts, and become obsessive. Others can’t easily find patterns in the numbers they are getting because the numbers themselves are merely a snapshot of that particular moment in time. What the blood sugar is doing between tests is the major unknown/unaccountable patterns. In that way these readings we now take/get gives a delusion/illusion of “control”.
Yeah… non-compliant…. if they’ll test and inject side by side with us, I’ll give them the benefit of the doubt… and at least hear them out. But until they do what we do… <ws
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