Archive for July, 2004

RE; Re;pump/Diana

Friday, July 9th, 2004

just the needle that goes in (then comes out). I called Disetronic
today, and they make an 8 mm canula. I use the 10 mm. My next
order will be the 8 mm. You didn’t gain weight from the pump? I
gained about 10 lbs. I was able to lower my basal rates, and now my
weight is steady. But I am not a big person. I’ve been on the
pump for about 5 years now. I think when I get the 8 mm, this won’t
happen again. Thanks Diana
I am glad you are getting a shorter canula, I hope it helps.
Before I got my pump I was on a roller coaster with the bloodsugar.
I hated having to eat when not hungry or not getting to eat if I
was. I think all the food I had to eat to cover the long acting
insulin and to cover all those lows kept me heavier. I lost 10 lbs
in the first few months and then leveled off. I know that some go
gain either from being able to eat all those goodies without a
change in bloodsugar or from being able to eat a normal healthy
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COMPLIANCE (was caffene raising sugar levels)

Wednesday, July 7th, 2004

Hello Carol,

Owwwwwwwwwwwwwwwww. This one is a major pet peeve.

I’ve left foot prints up one side and down the other of any MD/RN, or CDE who dares use that term. (If they thought I was non-compliant, try using that term and see ~seething hostile~!) It takes a special kind of ignorance to use that term with Type 1 folks…. (perhaps even with other diabetics as well???)

Compliance is fundamentally based on the whole “sugar fairy” view of diabetes. The rosey, cheery, rah-rah nothing will or can ever go wrong idea. The author who wrote “Diabetes Burnout” (Polansky I think) spoke briefly about this
(I loathed the book regardless, but thought several points were decently well made regardless).
.
Until our readings are done literally every 5 minutes for a couple of days, weeks (in order to REALLY tell what true patterns and sub patterns exist…) its all best guess-timation, and only best guess work we are able to make based on tangible detectable patterns and known habits. I was in a protocol many months ago which every 5 minutes for 3 days a reading was taken by the device. Contrary to some popular notions, I think we’re ALL aware this is a complex dis-ease. There are factors which are typically taken into consideration to explain ones numbers. Yet we (sic. I) often cannot easily figure out why our numbers are doing whatever they are attempting to do; high, low… what have you.

Lots of people get severely attached to these numbers, and eventually QUIT caring, stop doing them all together out of despair, frustration, fatigue. Some cannot FIND the patterns in their numbers no matter how tightly they “take hold” of every behavior possible. Some by virtue of that kind of hyper vigilance go nuts, and become obsessive. Others can’t easily find patterns in the numbers they are getting because the numbers themselves are merely a snapshot of that particular moment in time. What the blood sugar is doing between tests is the major unknown/unaccountable patterns. In that way these readings we now take/get gives a delusion/illusion of “control”.

Yeah… non-compliant…. if they’ll test and inject side by side with us, I’ll give them the benefit of the doubt… and at least hear them out. But until they do what we do… <ws

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NIDDK

Wednesday, July 7th, 2004

Hi everyone,
I have posted this before but since we have new members, I am posting
this again.
The NIDDK National Institutes of Health
National Diabetes Information Clearinghouse offers a set of free
booklets (not pamphlets) if you call their number. They are sent to you
at no cost and answer an enormous amount of questions you may have about
diabetes and they are in laymen’s terms. Written well enough for a child
to understand.
The phone number to call is: 1-800-860-8747.
The first whole set is free.
They are informative and really helpful for anyone with a child that is
diabetic.
Have a great evening!
Carol

Insulin expiration

Monday, July 5th, 2004

Hello everyone,
Just noticed (shame on me) the expiration date on the
box for my Lantus shows an expiration date of 09/2006
yet the insert that came with the bottle says discard
after 28 days!! I’ve been using this bottle for over a
month. Called my pharmacy for clarification and his
response was call the drug company. Thought i’d check
here first.
Thanks in advance!
Cheryl
T1 since 06/04
=====
Cheryl Williamson
Cheryl’s Typing & Transcribing Services
Folsom, California
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Caffeine Raising Sugar level

Sunday, July 4th, 2004

Hi Jeff
I’m a long-distance runner, and the times I most notice the apparent effect
of coffee on blood sugar is when I wake up early in the morning to leave for
a run. I typically don’t eat breakfast before a run, unless it is a marathon
event or longer. However, I always drink coffee before I leave. Many times
on waking my blood sugar will be relatively low (say 2.8 mmol/l), and, after
having coffee (with sweeteners and milk), I leave for the race - I don’t
even bother having anything else to raise the blood sugar. I then test again
just before the start of the race, and my blood sugar is usually around 6.7
at that point.
But your point about stress may be pertinent - maybe it is just the pre-race
anticipation/excitement that is slightly stressful, which raises the blood
sugar? Otherwise it could be the lactose in the milk, but I’ve never thought
I had taken enough milk to raise the blood sugar as much as it does get
raised.
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Phone

Saturday, July 3rd, 2004

If anyone would ever like to talk on the phone with me, you can email me
your number privately to carol@… or call me, ring twice and then
hang up, my Caller ID picks it up and I will call you back, if it comes
in as Unknown then I won’t know who it is.
I have a great long distance plan that allows me to call all 50 states
for $25.00 a month. I make use of it every chance I get. :) My number is 301-373-3248
Take care,
Carol Cusick

Caffeine/Brian

Thursday, July 1st, 2004

I am confused, you would go without food just to skip an injection? Maybe you should go on the pump?

I am probably missing something, so fill me in.

Rhonda
Mom to Sydney, 7
Type 1 since April 7, 2003