Archive for November, 2004

Anyone use sleep sentry?

Tuesday, November 30th, 2004

Hi,
Does anyone use Sleep Sentry (www.sleepsentry.com)?
This is a device that is strapped to the wrist. Apparently, it uses
the amount of perspiration and body temperature to detect a low blood
sugar level.
From what I have read, it is designed to be used during sleep. It
wakes up the wearer when it detects a hypo with an alarm.
It is priced quite high — around $350. I’d like to hear from people
who have used it before I buy one.
thanks
vivek

Happy Thanksgiving

Saturday, November 27th, 2004

Hi everyone, Happy thanksgiving to you all. Thank you for the past
few weeks worth of kind notes, helpful tips and overall support. Me
and Maddie are looking forward to a nice, quiet, and healthy
thanksgiving. Did I mention that she broke out in chicken pox
yesterday????? Just when I thought it was safe to breath that sign
of relief…….
Many blessings to you all,
Stephanie

refusing treatment

Thursday, November 25th, 2004

i find it hard to believe that you guys don’t go to the doctor for
treatment of your diabetes. i was diagnosed with diabetes at 8
years old in 1982. my diabetic doctor was great. she was at the
children’s hospital. she was very strict and in the 80’s until 1993
i saw her. in 1993 when i turned 19 the children’s medical center
told me i had to start going to adult hospitals and an adult
endocriniologist. while i was with my children’s medical center
doctor my A1c was in the 7’s. when i went to go see my first adult
endo. he walked in to my room and said to me….you don’t even look
diabetic. i walked out of the man’s office. from that point on i
saw my family doctor for my diabetes. from 19-27 my family doctor
took care of me. my diabetes went “out of control”. finally i went
to another endocrinologist and he got me off of my NPH and regular,
that i had been on from 1982-2001. he put me on lantus and regular.
this was in tampa florida. i moved back to dayton ohio and started
(more…)

Hello to group!

Sunday, November 21st, 2004

Hi,
I have been diabetic for 35 years. Recently (today, actually), I
called the doc to get a refill on my insulin, but he refuses because
i have not been to see him since Feb 2003. My last script was
written with the understanding that i make an appt ASAP. I did.
The earliest appt they had was for December! So. I am almost out
of insulin, the script service I use cannot get it to me as soon as
I need it due to time constraints, and I am essentially out of
luck. My primary care doc won’t write the script because I am under
the other doc’s care for my diabetes. Any suggestions?????
By the way, thank you all for listening!
: )
Joan

Digest Number 569

Friday, November 19th, 2004

Thanks for your response. To answer your question, I’m not sure how or
if her developmental delay affects her diabetes, but it does mean that
she is functioning intellectually and emotionally at a younger age than
her chronological years. So far, she has not had any life-threatening
crises but I cannot imagine that it’s far away given her extremely poor
control. I am hoping to find a support group for her, but am frankly
pessimistic that it will help much at this point. I will pursue it,
though. Thanks for your suggestion and I’ll keep watching posts for
further comments.
-D

Pig insulin

Thursday, November 18th, 2004

Hello Stephanie,

The beef/beef-pork is what I used for the first 20-25 years with regular. Total of 1 single shot per day…. <SIGH

The long acting insulins are unpredictable creatures. However, the beef pork is FAR more volitile than the recumbinant <sp.?

Now having said all that, based on what you wrote… consider taking it easy on the “anything she wants”… business. She’ll have lows and will bounce high(er) caused by the lows later on. How hard she bounces, or how hard will depend on a lot of different factors. Just be cautious of over treating. It’ll take time to get you the “thick skin” to not do the very understandable “protective parent” thing. Don’t sweat any of it too much… this is hard enough as it is… give yourself some time to figure out the approach. Panic will harm her and you didn’t… that takes serious guts, GOOD JOB!!!!

Try getting the tiny tubes of cake icing or the gluctose gel tubes are IDEAL.

They fit in your purse, the car, anyplace you can possibly imagine needing or wanting one and are absorbed on contact because they are a gel. No chewing or drinking required. Ideal in combative or seizure type situations… Heck they even work in pools, or rivers, scuba diving… there’s no place they won’t work. And they fit into your pocket and can bend nicely too.

Consider this…

Jeff

desperate mom

Thursday, November 18th, 2004

Hi all,
I am the mother of a 29-year-old developmentally delayed daughter who
has had
Type 1 diabetes for 15 years. Ever since she became independent
enough to live
on her own, her diabetes control has gotten progressively worse and
worse.
Today, she is about 100 lbs overweight and her blood sugars are
running in the
200-300’s. I have tried threatening, bribing, bargaining and
reasoning with her.
I have tried buying her food for her (which makes her very resentful
and angry),
calling her 4-5 times a day to make sure she tests, buying her a
watch with an
(more…)

First Follow up appointment - Pig Insulin

Tuesday, November 16th, 2004

Hey everyone,
We went back to the hospital yesterday for Maddie’s first follow up
since being diagnosed on 10/28. She has gained 6 pounds, (she had
lost 5 when all of this started) so yeah for that. But now they are
afraid of her gaining too much too quickly so we’re meeting with the
nutritionist next week who will go over the food diary I’ve been
keeping and make necessary changes.
Coming back yesterday, in the car Maddie started uncontrollably
crying for some reason. After listening to it for 5 minutes I pulled
the car over, tested her and she was at 27. I gave her a juice,
pulled into the first fast food restaurant I could find and let her
have whatever she wanted, needed, including a large soda. I called
the doctor when we got back who told me the best idea would be to
switch her from human NPH to pig NPH. After I picked my jaw up off
the floor, they told me that it’s very common for children to use
(more…)

Support Groups

Monday, November 15th, 2004

Has anyone ever been to a support group. My parents tried to make me
go as as teen but I always refused and up until now I never thought
I’d ever want to attend one. However, reading all the post on here
and being able to discuss this disease with others that have it and
understand is great. It would be nice to be able to discuss it in
person.

Uncontrolled diabetes

Sunday, November 14th, 2004

Hello Vicky,

Unfortunately there are many different perspectives on this strange beast diabetes. If everyone had mine <ggg

I offer that many times I STILL prefer someone else, ANYONE else do either for me… as often as they might wish to do so. It is a bizarre thing… yup in order to be healthy, I need to hurt myself testing, injecting in order to be healthy. Required obviously, but its still self-abuse in some ways…
Still the sooner anybody learns to do them on their own the better off… now you have 2 or 3 people willing and able.

The only thing you MUST CHECK is obviously checking their insulin dosage. Can’t tell you the number of times if I had been in charge as a kid that I would have killed myself, had the idea occurred to me to alter the dosage
With kids, and particularly young kids… you cannot easily tell whats happeneing to get their numbers, whatever they might be. High or low, your high or the doctors high… somebody isn’t happy about something somewhere. The danger to too tight control, ANY TYPE OF CONTROL runs the risk of causing the lows which result from having an “iron fist” about the numbers. Too heavy, too much poking, too much injecting and I propose you run the risk of literally becoming a basketcase… looneytunes, and obsessive to boot.

Be careful, be GRADUAL in what you do. If we do things too fast, or too impuulsively and you pay the price for doing so. Caution won’t kill you… caution is a friend : )

jeff