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	<title>Comments on: my 2 cents on everything mentioned</title>
	<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/</link>
	<description>for anyone who has been touched by this disease</description>
	<pubDate>Fri, 05 Dec 2008 02:44:27 +0000</pubDate>
	<generator>http://wordpress.org/?v=2.2.1</generator>

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		<title>By: Arlen Roberts</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3898</link>
		<author>Arlen Roberts</author>
		<pubDate>Wed, 04 May 2005 01:09:32 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3898</guid>
		<description>Hm, Judith and Catie, travelling together....  could be we'd need the thunder to cover all the chatter???

sry, had to say it.</description>
		<content:encoded><![CDATA[<p>Hm, Judith and Catie, travelling together&#8230;.  could be we&#8217;d need the thunder to cover all the chatter???</p>
<p>sry, had to say it.</p>
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	<item>
		<title>By: collier500</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3896</link>
		<author>collier500</author>
		<pubDate>Mon, 02 May 2005 10:15:49 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3896</guid>
		<description>Do you have your JDRF orange band? Our neighbor found them in the paper or something and gave them to us at Christmas. I now have an order in as well.

www.max-life.com

Go check it out!

Thanks for caring and sharing,
Rhonda
Mom to Sydney, 7
type 1 since April 7, 2003</description>
		<content:encoded><![CDATA[<p>Do you have your JDRF orange band? Our neighbor found them in the paper or something and gave them to us at Christmas. I now have an order in as well.</p>
<p><a href="http://www.max-life.com" rel="nofollow">www.max-life.com</a></p>
<p>Go check it out!</p>
<p>Thanks for caring and sharing,<br />
Rhonda<br />
Mom to Sydney, 7<br />
type 1 since April 7, 2003</p>
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		<title>By: Luella Buckner</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3884</link>
		<author>Luella Buckner</author>
		<pubDate>Thu, 21 Apr 2005 00:28:27 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3884</guid>
		<description>This is very direct &#38; straightforward, and I apologize to any who I
offend, even you, Robby.
~ Judith
see, your post was exactly what everyone is telling me to watch out
for. a typical scare tactic. just because 1 person has problems
doesnt mean another person will. are you going to sit here and tell
me that the american diabetes association and my ecronologist doesnt
know what they are doing? you're just like the rest of them. you act
like you are doomed to die young, or get heart disease. well thats
not going to happen to me. no sir! diabetes complications can be
prevented! you dont have to sit there and get kidney disease and all
that crap. why do you think these people i've talked to and have had
no trouble are like that? could it be because they followed their
doctors orders?? hmm, yep, i'd say so!
robby</description>
		<content:encoded><![CDATA[<p>This is very direct &amp; straightforward, and I apologize to any who I<br />
offend, even you, Robby.<br />
~ Judith<br />
see, your post was exactly what everyone is telling me to watch out<br />
for. a typical scare tactic. just because 1 person has problems<br />
doesnt mean another person will. are you going to sit here and tell<br />
me that the american diabetes association and my ecronologist doesnt<br />
know what they are doing? you&#8217;re just like the rest of them. you act<br />
like you are doomed to die young, or get heart disease. well thats<br />
not going to happen to me. no sir! diabetes complications can be<br />
prevented! you dont have to sit there and get kidney disease and all<br />
that crap. why do you think these people i&#8217;ve talked to and have had<br />
no trouble are like that? could it be because they followed their<br />
doctors orders?? hmm, yep, i&#8217;d say so!<br />
robby</p>
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	<item>
		<title>By: Luella Buckner</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3873</link>
		<author>Luella Buckner</author>
		<pubDate>Fri, 08 Apr 2005 03:45:23 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3873</guid>
		<description>ADVERTISEMENT
 Robby,
 I have not had any problems but I did mention that Diabetes 1 is
 common in my dad's side of the family. My cousin has diabetes since
 10 (me about the same) and she has had a kidney transplant even
 though she has been even more diligent than me about her health. My
 Endocrinologist told me one can minimise the chances of complications
 but that sometimes diabetes can interact with other genetic
 predispositions and that the same as any other illness there are no
 guarantees. There are no guarantees in life - I had friend (didn't
 drink smoke and ran marathons - not a diabetic - die of a heart
 attack at 35 - unknown genetic fault)I don't feel it fair to say that
 those who look after themselves have no problems. I have always
 looked after my sugars really well but went through a rebellious
 stage for 5 years where I drank , smoke and ate everything i wanted
 &lt;!--more--&gt;
 (no cake though). I even tried other 'medication' but I am 100%
 where my health fanatic cousin has had terrible kidney problems. I
 don't say this to depress you but be aware that one can minimise
 one's risk and maybe prevent complications altogether but that some
 who do look after themselves still suffer and there is no fault.
 Even in the case where some diabetics go through a period of
 rebellion there is no fault .
 oh i understand that there is no guarantee. but why go through life
 worrying about what may or may not happen? anyone may or may not get
 cancer, but its silly to sit there and worry about it. i could or
 could not get in a car accident, but why worry about it? as long as i
 know i'm doing all i can to prevent those problems, i'm happy. do i
 honestly think i'll ever get them? no. if they ever happen, i'll deal
 with it then. they'd be able to catch them during my routine doctor
 visits and stop it before it got to bad though, if i ever did.
 robby</description>
		<content:encoded><![CDATA[<p>ADVERTISEMENT<br />
 Robby,<br />
 I have not had any problems but I did mention that Diabetes 1 is<br />
 common in my dad&#8217;s side of the family. My cousin has diabetes since<br />
 10 (me about the same) and she has had a kidney transplant even<br />
 though she has been even more diligent than me about her health. My<br />
 Endocrinologist told me one can minimise the chances of complications<br />
 but that sometimes diabetes can interact with other genetic<br />
 predispositions and that the same as any other illness there are no<br />
 guarantees. There are no guarantees in life - I had friend (didn&#8217;t<br />
 drink smoke and ran marathons - not a diabetic - die of a heart<br />
 attack at 35 - unknown genetic fault)I don&#8217;t feel it fair to say that<br />
 those who look after themselves have no problems. I have always<br />
 looked after my sugars really well but went through a rebellious<br />
 stage for 5 years where I drank , smoke and ate everything i wanted<br />
 <!--more--><br />
 (no cake though). I even tried other &#8216;medication&#8217; but I am 100%<br />
 where my health fanatic cousin has had terrible kidney problems. I<br />
 don&#8217;t say this to depress you but be aware that one can minimise<br />
 one&#8217;s risk and maybe prevent complications altogether but that some<br />
 who do look after themselves still suffer and there is no fault.<br />
 Even in the case where some diabetics go through a period of<br />
 rebellion there is no fault .<br />
 oh i understand that there is no guarantee. but why go through life<br />
 worrying about what may or may not happen? anyone may or may not get<br />
 cancer, but its silly to sit there and worry about it. i could or<br />
 could not get in a car accident, but why worry about it? as long as i<br />
 know i&#8217;m doing all i can to prevent those problems, i&#8217;m happy. do i<br />
 honestly think i&#8217;ll ever get them? no. if they ever happen, i&#8217;ll deal<br />
 with it then. they&#8217;d be able to catch them during my routine doctor<br />
 visits and stop it before it got to bad though, if i ever did.<br />
 robby</p>
]]></content:encoded>
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	<item>
		<title>By: Eve Yi</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3872</link>
		<author>Eve Yi</author>
		<pubDate>Thu, 07 Apr 2005 17:35:58 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3872</guid>
		<description>Robby,
 
 I have not had any problems but I did mention that Diabetes 1 is common in my dad's side of the family.  My cousin has diabetes since 10 (me about the same) and she has had a kidney transplant even though she has been even more diligent than me about her health.  My Endocrinologist told me one can minimise the chances of complications but that sometimes diabetes can interact with other genetic predispositions and that the same as any other illness there are no guarantees.  There are no guarantees in life  - I had  friend (didn't drink smoke and ran marathons - not a diabetic - die of a heart attack at 35 - unknown genetic fault)I don't feel it fair to say that those who look after themselves have no problems.  I have always looked after my sugars really well but went through a rebellious stage for 5 years where I drank , smoke and ate everything i wanted (no cake though).  I even tried other 'medication' but I am 100% where my health fanatic cousin has had terrible kidney
 problems. I don't say this to depress you but be aware that one can minimise one's risk and maybe prevent complications altogether but that some who do look after themselves still suffer and there is no fault.  Even in the case where some diabetics go through a  period of rebellion  there is no fault .
 robert stickler &#60;losinmyself25@...
 
   Humbly, Robby, did you get that information from a
   medical "professional?"  You have a wealth of experience &#38; knowledge
   here on the list from people who actually LIVE diabetes.  It's a
   great place to "know" diabetes and get the best information on the
   scope of diabetes, while learning what YOUR diabetes is for you.
   You can study piano in books and on the internet, talk to concert
   pianists for a lifetime, but until you sit at the piano, you won't
   know how to play piano.
   hmm, well i read the books straight from the american diabetes
 &lt;!--more--&gt;
   association. my doctor told me today that she doubts i'll ever have
   any problems. i've met so many people online now that have never had
   any trouble, its obvious that the people who get the problems USUALLY
   are the ones who dont stick to what their doctor tells them to do. i
   highly doubt i'll ever have any problems, and if i do, they will be
   minor. none of the major stuff like heart disease.
   robby
 
 Natalie
 [INLINE]</description>
		<content:encoded><![CDATA[<p>Robby,</p>
<p> I have not had any problems but I did mention that Diabetes 1 is common in my dad&#8217;s side of the family.  My cousin has diabetes since 10 (me about the same) and she has had a kidney transplant even though she has been even more diligent than me about her health.  My Endocrinologist told me one can minimise the chances of complications but that sometimes diabetes can interact with other genetic predispositions and that the same as any other illness there are no guarantees.  There are no guarantees in life  - I had  friend (didn&#8217;t drink smoke and ran marathons - not a diabetic - die of a heart attack at 35 - unknown genetic fault)I don&#8217;t feel it fair to say that those who look after themselves have no problems.  I have always looked after my sugars really well but went through a rebellious stage for 5 years where I drank , smoke and ate everything i wanted (no cake though).  I even tried other &#8216;medication&#8217; but I am 100% where my health fanatic cousin has had terrible kidney<br />
 problems. I don&#8217;t say this to depress you but be aware that one can minimise one&#8217;s risk and maybe prevent complications altogether but that some who do look after themselves still suffer and there is no fault.  Even in the case where some diabetics go through a  period of rebellion  there is no fault .<br />
 robert stickler &lt;losinmyself25@&#8230;</p>
<p>   Humbly, Robby, did you get that information from a<br />
   medical &#8220;professional?&#8221;  You have a wealth of experience &amp; knowledge<br />
   here on the list from people who actually LIVE diabetes.  It&#8217;s a<br />
   great place to &#8220;know&#8221; diabetes and get the best information on the<br />
   scope of diabetes, while learning what YOUR diabetes is for you.<br />
   You can study piano in books and on the internet, talk to concert<br />
   pianists for a lifetime, but until you sit at the piano, you won&#8217;t<br />
   know how to play piano.<br />
   hmm, well i read the books straight from the american diabetes<br />
 <!--more--><br />
   association. my doctor told me today that she doubts i&#8217;ll ever have<br />
   any problems. i&#8217;ve met so many people online now that have never had<br />
   any trouble, its obvious that the people who get the problems USUALLY<br />
   are the ones who dont stick to what their doctor tells them to do. i<br />
   highly doubt i&#8217;ll ever have any problems, and if i do, they will be<br />
   minor. none of the major stuff like heart disease.<br />
   robby</p>
<p> Natalie<br />
 [INLINE]</p>
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		<title>By: Luella Buckner</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3864</link>
		<author>Luella Buckner</author>
		<pubDate>Wed, 30 Mar 2005 19:59:53 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3864</guid>
		<description>Humbly, Robby, did you get that information from a
 medical "professional?" You have a wealth of experience &#38; knowledge
 here on the list from people who actually LIVE diabetes. It's a
 great place to "know" diabetes and get the best information on the
 scope of diabetes, while learning what YOUR diabetes is for you.
 You can study piano in books and on the internet, talk to concert
 pianists for a lifetime, but until you sit at the piano, you won't
 know how to play piano.
 hmm, well i read the books straight from the american diabetes
 association. my doctor told me today that she doubts i'll ever have
 any problems. i've met so many people online now that have never had
 any trouble, its obvious that the people who get the problems USUALLY
 are the ones who dont stick to what their doctor tells them to do. i
 highly doubt i'll ever have any problems, and if i do, they will be
 minor. none of the major stuff like heart disease.
 &lt;!--more--&gt;
 robby</description>
		<content:encoded><![CDATA[<p>Humbly, Robby, did you get that information from a<br />
 medical &#8220;professional?&#8221; You have a wealth of experience &amp; knowledge<br />
 here on the list from people who actually LIVE diabetes. It&#8217;s a<br />
 great place to &#8220;know&#8221; diabetes and get the best information on the<br />
 scope of diabetes, while learning what YOUR diabetes is for you.<br />
 You can study piano in books and on the internet, talk to concert<br />
 pianists for a lifetime, but until you sit at the piano, you won&#8217;t<br />
 know how to play piano.<br />
 hmm, well i read the books straight from the american diabetes<br />
 association. my doctor told me today that she doubts i&#8217;ll ever have<br />
 any problems. i&#8217;ve met so many people online now that have never had<br />
 any trouble, its obvious that the people who get the problems USUALLY<br />
 are the ones who dont stick to what their doctor tells them to do. i<br />
 highly doubt i&#8217;ll ever have any problems, and if i do, they will be<br />
 minor. none of the major stuff like heart disease.<br />
 <!--more--><br />
 robby</p>
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		<title>By: Luella Buckner</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3859</link>
		<author>Luella Buckner</author>
		<pubDate>Sat, 26 Mar 2005 07:02:20 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3859</guid>
		<description>You know, I have been at this so long, I kind of resist going into
 some of the new treatments. I had looked at a pump several years ago
 and decided I didn't want all the changes. I still basically use the
 old exchange system. It seems to be working quite well. I have a
 few ups and downs, but they can usually be explained. My new endo
 said I was doing well enough with multiple injections and didn't push
 the pump. He was the one that told me the other day that another of
 his patients just had both transplants. The kidney was doing fine
 but the pancreas was rejected. I suppose I will probably go with my
 first instinct and ask for both. If it doesn't take, I am not out
 anything. If it does, THANK GOD! I have had that frame of mind for
 quite some time. I have always said I would be a guiney pig for
 pancreas transplants. I guess I will just have to wait and see what
 happens. The dialysis people told me not everybody is eligible for
 transplants. I don't think I would want to know that. I would
 &lt;!--more--&gt;
 rather be told I was on the list and just not have a match come up.
 My endo told me too, the other day that the kind of dialysis I want
 to do may not be the best for me. They use a glucose fluid. I am
 thinking that all my insulins would have to be adjusted. They did
 also tell me that once kidneys quit altogether sugar numbers are
 usually lower because the kidney breaks down insulin. Once they
 don't work you get the full effect. Another good side effect of
 dialysis is better blood pressure. At least that is what they told
 me.
 Lori
 why did your kidneys go bad? did your sugars stay to high for to many
 years?
 robby</description>
		<content:encoded><![CDATA[<p>You know, I have been at this so long, I kind of resist going into<br />
 some of the new treatments. I had looked at a pump several years ago<br />
 and decided I didn&#8217;t want all the changes. I still basically use the<br />
 old exchange system. It seems to be working quite well. I have a<br />
 few ups and downs, but they can usually be explained. My new endo<br />
 said I was doing well enough with multiple injections and didn&#8217;t push<br />
 the pump. He was the one that told me the other day that another of<br />
 his patients just had both transplants. The kidney was doing fine<br />
 but the pancreas was rejected. I suppose I will probably go with my<br />
 first instinct and ask for both. If it doesn&#8217;t take, I am not out<br />
 anything. If it does, THANK GOD! I have had that frame of mind for<br />
 quite some time. I have always said I would be a guiney pig for<br />
 pancreas transplants. I guess I will just have to wait and see what<br />
 happens. The dialysis people told me not everybody is eligible for<br />
 transplants. I don&#8217;t think I would want to know that. I would<br />
 <!--more--><br />
 rather be told I was on the list and just not have a match come up.<br />
 My endo told me too, the other day that the kind of dialysis I want<br />
 to do may not be the best for me. They use a glucose fluid. I am<br />
 thinking that all my insulins would have to be adjusted. They did<br />
 also tell me that once kidneys quit altogether sugar numbers are<br />
 usually lower because the kidney breaks down insulin. Once they<br />
 don&#8217;t work you get the full effect. Another good side effect of<br />
 dialysis is better blood pressure. At least that is what they told<br />
 me.<br />
 Lori<br />
 why did your kidneys go bad? did your sugars stay to high for to many<br />
 years?<br />
 robby</p>
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	<item>
		<title>By: Luella Buckner</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3856</link>
		<author>Luella Buckner</author>
		<pubDate>Thu, 24 Mar 2005 00:33:34 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3856</guid>
		<description>Every person is different. I hope you stay healthy, but I went 25
years with no major complications, now I have plenty. Yes, taking
care of yourself is a big help, but complications do happen.
from all the people i've talked to on the net, they rarely happen.
the people that usually get them are the people that refuse to follow
their doctors' instructions.
robby</description>
		<content:encoded><![CDATA[<p>Every person is different. I hope you stay healthy, but I went 25<br />
years with no major complications, now I have plenty. Yes, taking<br />
care of yourself is a big help, but complications do happen.<br />
from all the people i&#8217;ve talked to on the net, they rarely happen.<br />
the people that usually get them are the people that refuse to follow<br />
their doctors&#8217; instructions.<br />
robby</p>
]]></content:encoded>
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		<title>By: Arlen Roberts</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3854</link>
		<author>Arlen Roberts</author>
		<pubDate>Tue, 22 Mar 2005 16:12:25 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3854</guid>
		<description>Catie,

I feel the same way with the humalog and lantus.  It's a huge relief and a very simple pleasure that most take for granted.

Joan</description>
		<content:encoded><![CDATA[<p>Catie,</p>
<p>I feel the same way with the humalog and lantus.  It&#8217;s a huge relief and a very simple pleasure that most take for granted.</p>
<p>Joan</p>
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	<item>
		<title>By: Arlen Roberts</title>
		<link>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3853</link>
		<author>Arlen Roberts</author>
		<pubDate>Mon, 21 Mar 2005 22:02:49 +0000</pubDate>
		<guid>http://www.type-1-diabetes.zolushka123.com/2005/03/17/my-2-cents-on-everything-mentioned/#comment-3853</guid>
		<description>ok.  Last post of the evening, I promise.

There are a couple locations doing research on islet cell transplants.  I know the U of Wisconsin in Madison is doing one.

The deal is, it is still considered experimental.  Therefore, the expense is the patient's responsibility.  The amount is $32,000.00, covering all injections of the transplant.

In this case, the transplant is done via injection.  If the first one does not work well enough, there is a second, and finally a third, if necessary.

The success rate appears to be promising, however, one must remain on anti-rejection meds indefinitely.  This opens the chance for infection, which is something with which we live every day as diabetics, anyway.  The majority of the volunteers have been non-diabetic for more than 5 years after the transplant injections.  5 years without a shot.  without finger sticks.  to be 'normal.'  We may convince ourselves that we are normal, but if you look at our mindset, we have simply adjusted well to our challenges.  Diabetes has become a way of life and lifestyle for us.  I am not saying that is a bad thing, but it is not the 'norm.'  And I use the word 'norm' in a statistical sense, not a judgemental one.

I had thought about the transplant, but had trouble finding $32,000 lying around the house, especially with student loans!  Maybe next year when I make the big bucks. (Yes, I am kidding.)

Something to ponder, anyway.

Joan</description>
		<content:encoded><![CDATA[<p>ok.  Last post of the evening, I promise.</p>
<p>There are a couple locations doing research on islet cell transplants.  I know the U of Wisconsin in Madison is doing one.</p>
<p>The deal is, it is still considered experimental.  Therefore, the expense is the patient&#8217;s responsibility.  The amount is $32,000.00, covering all injections of the transplant.</p>
<p>In this case, the transplant is done via injection.  If the first one does not work well enough, there is a second, and finally a third, if necessary.</p>
<p>The success rate appears to be promising, however, one must remain on anti-rejection meds indefinitely.  This opens the chance for infection, which is something with which we live every day as diabetics, anyway.  The majority of the volunteers have been non-diabetic for more than 5 years after the transplant injections.  5 years without a shot.  without finger sticks.  to be &#8216;normal.&#8217;  We may convince ourselves that we are normal, but if you look at our mindset, we have simply adjusted well to our challenges.  Diabetes has become a way of life and lifestyle for us.  I am not saying that is a bad thing, but it is not the &#8216;norm.&#8217;  And I use the word &#8216;norm&#8217; in a statistical sense, not a judgemental one.</p>
<p>I had thought about the transplant, but had trouble finding $32,000 lying around the house, especially with student loans!  Maybe next year when I make the big bucks. (Yes, I am kidding.)</p>
<p>Something to ponder, anyway.</p>
<p>Joan</p>
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