Archive for August, 2005

Looking diabetic

Monday, August 29th, 2005

Dear Jennifer,
I just thought about it and I hope you know I sent the picture of my
foot as a joke. I wasn’t taking lightly
what the dr. had said to you, but it was a compliment. I do everything
to not look ill. My own dr. knows if I show up in his office with no
make-up, hair not done, fingernails raggedy—then I’ve been sick. I’m
a little fanatical about looking as healthy as I can so
he really did pay you a nice compliment. I think I would have been more
offended had he told me I looked like crap! ;-) As far as a moron goes, yes he was. Not looking at your chart first is a
sure sign of incompetency. I learned a long time ago how to remedy that.
I always take a printout of my medical history to date to every visit so
his butt has ’something’ paper clipped to the front that he has to read.
I don’t care how redundant it might be, it gets his attention. I also do
this with my med list. That catches their eye too. I tell the nurse to
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diabetes and trigger finger/trigger thumb

Friday, August 26th, 2005

well i went to the doctor today because i have been having some
problem with my left thumb, it would not bend and if i tried to make
it bend it would start shaking plus it hurt really bad. so the
doctor comes in to look at my thumb….i thought he would have
looked over my chart first but he did not. he said you have trigger
thumb and will need a cortisone shot to try to help it. i
said, “how will this affect my blood sugars?” he says,”oh you have
diabetes?” me,”yes”, he says”you don’t look diabetic” WHAT IN
THE WORLD i did not know that diabetics had a “look”. he said,
that it was a compliment and i should be rewarded for taking such
good care of myself. then made a joke and said…your reward must be
the insulin pump you are on. ANYWAYS…he says that diabetes and
trigger finger and trigger thumb is very common….I did not know
this, so i looked it up online…AND sure enough there it is.
another thing to add to the list of crap we have to deal with. that
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A cure is in sight…

Thursday, August 25th, 2005

Hi all…
I wrote a post last night about Lee Iacocca’s website and his fight
for a cure. If you haven’t already taken a look at what his
foundation is fighting for, you should. It is very moving and very
encouraging.
WEBSITE: “joinleenow.org”
His Doctor has reversed and cured Type 1 diabetes in mice and now he
is working on translating that to humans…
I don’t have much money at the moment but I decided to donate $50.
If you agree with me after reading what he has done and is doing, any
little donation can help.
FIGHT FOR A CURE!!
Evelyn :-)

Lee Iacocca’s website

Tuesday, August 23rd, 2005

Hi all…
I was researching type 1 diabetes and I was really moved by Lee
Iacocca’s will to find a cure. I didn’t know if anyone else had
visited his website but it is very encouraging.
WEBSITE: “joinleenow.org”
It looks like he is on the path to a cure…
Wouldn’t that be wonderful :-) Evelyn

Islet Cell Transplant

Monday, August 15th, 2005

I don’t know if any of you know this, but the Islet Cell Transplant
cost $25,000 not covered by insurance. My husband and I looked into
it and we are still considering it. We would take out a loan for
the surgery. If this has changed or if any of you have additional
information about the financial side of this please let me know. I
know a woman that had diabetes. she had the pancreas/kidney
transplant and they had her on 36 rejection pills a day, she now
takes 18. With the islet cell transplant, you start off taking 5
rejection pills and then go to 2 for the rest of your life. it is
something to research, because as with having diabetes there are
risk to consider.

i can’t do this…:(

Sunday, August 14th, 2005

I can’t do this….live with this disease. I HAVE to find a way to make it just go away. I’m not strong enough…
:( Jenny


All who see me jeer at me; they
toss their heads and sneer…
Oh God, my God, why have you
abandonded me?
–Psalm 22

stacy

Wednesday, August 10th, 2005

i do understand what you are going through. i made a post in here
about 2 weeks ago mentioning my diabetic friend died. he was 29 had
diabetes for 23 years and a good friend of mine for 21 years. you
have to really get on him. i dont mean to scare you. but… my
friend is gone and i am so hurt that he didnt care enoough about
himself, his family or friends to do what he needed to do.

Looking for a good shoulder…..

Friday, August 5th, 2005

OK, gang….I’m in need of an understanding shoulder today…….. Should have been a really good day for me. It’s my birthday and my diabetes is 28 years old today. Last night, I found out that a friend of mine who is also T1 is having some major problems. He’s nearly blind in one eye due to no new blood vessel growth and is having bad problems with the other eye. No bleeders yet, but that has just made it easier for him to ignore. He is now facing 7 laser surgeries, to be followed up by vitrectomies in BOTH eyes.

Ever since my vitrectomy, in November of 1999, I have been trying to talk to him about taking care of himself without going so far as nagging. Apparently, he didn’t hear a word I was saying. He will be 25 in April, and has been T1 for almost 20 years. This guy is like a little brother to me. When his Dad was telling me about it all, I got a real kick in the gut. Apparently Chris (my friend) told his Dad that “Stacy went through this & she’s OK. She’s not worrying anymore about her BG’s or anything.” Whew. I must have been talking to a wall when I told him how scared I was & how much harder I was working at my control.

ARRRGGGHHHHHHHH!!!!!!!!!!!!!

Now I know how my Mom felt. And I know it is a lesson that he has to learn on his own. I’m just so frustrated. And that he tried to use *me* as an example for his own defense, when it is sooooo off base.

I would be ever so grateful if you could all mention my friend when you say your prayers tonight…..to whichever deity you prefer…….not fussy at this point.

Thanks for listening. I just really needed to get that out.

I ask my God to Bless you all.

Thanks,
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